Resources & Training
Patient-oriented research asks everyone to embrace new ways of working.
Not sure how to get started? Check out our training modules and resources to learn the basics of patient engagement.
You can also connect below to trusted kidney health information and and peer support resources from our partners.
Patient-Oriented Research Resources
This module helps patients better understand the research process and landscape in Canada, with the goal of helping them participate more meaningfully throughout all stages of research.
KidneyPro, along with providing a general overview of kidney research in Canada, helps participants familiarize themselves with the roles that patient partners can play in research.
Storytelling for Impact
All patients and their family members have important stories that capture the emotions and real-life experiences of what is like to live with kidney disease and receive care. Sharing these stories with research teams and others is a helpful strategy for fostering better appreciation and understanding of what it is like to live with kidney disease.
This module has been designed to help patient partners write their stories around two moments of care that they wish to share, along with a call to action for improving kidney care.
Patient Engagement Toolkit
As patients and researchers began to work together more and more, there was a need for practical tools to support these collaborations. The Patient Engagement Toolkit helps research teams communicate, identify common goals, and define roles for patients.
The toolkit includes tips for collaboration in patient engagement, a glossary of terms, and practical tools to support the internal functioning of teams, such as a skills and contributions chart.
Knowledge Translation Principles
This online, self-paced module provides the learner with practical tips on how to summarize key messages from an academic publication and then how to communicate that information using plain language. This will allow the learner to better communicate information in a clear and concise way, as well as perfect an elevator pitch!
Upon completion, learners will receive a two-page handout summarizing the key takeaways from the module.
Kidney Health Resources
Learn More About Your Kidneys
Kidney health information is delivered through educational materials that can be accessed online and are distributed free of charge to any Canadian living with kidney disease; they can also be found at your local renal unit or through Kidney Foundation offices.
Kidney Community Kitchen
Diet plays a significant role in the management of chronic kidney disease. Free and easy to use, this Kidney Foundation resource aims to make cooking and food as easy and fun as possible.
Programs and Services
Learn more about programs and services for those living with kidney disease, including short-term financial assistance, camps, living donor reimbursement programs and bursaries.
Webinars and Educational Resources
Developed in partnership with people diagnosed with kidney disease, care partners, healthcare professionals, and researchers all over Canada, our webinars, virtual educational forum and other resources aim to present you with trustworthy and up-to-date information to help you live your best life with kidney disease.
My Kidneys, My Health
My Kidneys My Health (MKMH) is a freely available, interactive website that provides people living with kidney disease with information on relevant health-related topics. It includes special tools to help people make lifestyle changes and promote enhanced communication with health care providers.
Kidney Wellness Hub
The Kidney Foundation has created a unique and free online platform to help support the physical, mental, social and spiritual wellbeing of kidney patients, care partners, and living donors. Wherever you are on your kidney journey — newly diagnosed with kidney disease, living with reduced kidney function, on dialysis, a transplant recipient — or a caregiver to a kidney patient — we have designed and customized content with you in mind.
Peer Support Resources
Peer Support Programs
Being diagnosed with a chronic illness is life-changing and can happen with little or no warning. Talk to others with similar life experiences about what to expect when learning to live with kidney disease.
This Kidney Foundation online community lets you connect with other people living with or affected by kidney disease.
Indigenous Cultural Competency Resources
Wabishki Bizhiko Skaanj Learning Pathway
Wabishki Bizhiko Skaanj (wah-bish-kih biish-ih-goo skaa-nch) is a training platform that aims to enhance knowledge and awareness of racial biases, Indigenous voices and stories, the impact of colonization on Indigenous health, and culturally safe health research practices.
The learning pathway comprises existing resources, such as San’yas, OCAP, Tri-Council Policy Statement Chapter 9, and the KAIROS Blanket Exercise, in addition to original components developed by the Can-SOLVE CKD Network.
Participants may complete one or more components of the pathway depending on their learning needs and ability. Self-reflection will be a critical part of each component.
Supporting Each Other’s Journey Land Acknowledgment Series
“Supporting Each Other’s Journey” is a four-part Land Acknowledgment webinar series intended to:
- acknowledge the power of Indigenous resilience, and understand the intended purpose, history and context around offering Land Acknowledgments;
- offer the participants the opportunity to embark on the journey towards reconciliation, by using Land Acknowledgments with more purpose, conviction, and integrity; and
- develop a personalized Land Acknowledgment which demonstrates the relationship and connection to the land.
Knowledge Keepers in Research
“Knowledge Keepers in Research” is a virtual guidebook and video series that aims to create a culturally safe space for researchers, patient partners and Knowledge Keepers to come together.
The module encourages researchers to honor various forms of knowledge alongside Indigenous Knowledge Keepers and helps them translate those teachings into practice.