Get involved! Pediatrics Committee is looking for patient representatives
The Pediatrics Committee represents child kidney research for the larger Can-SOLVE CKD Network. Can-SOLVE CKD prioritizes patient-oriented and patient-guided research. The Pediatric Committee aims to promote high-quality research in child kidney disease, to improve the health of children across Canada who are living with kidney disease. The committee currently includes pediatric kidney doctors and researchers from across the country. They identify research priorities by working closely with other researchers, experts, and community and funding partners, together with the larger Can-SOLVE CKD Network.
We need you! We want to perform research that is important and relevant to patients. We are looking for patients and/or patient representatives (most often, this mean parents) to ensure that the interests of patients are always the top priority in all the projects we undertake.
Contact: Alicia Murdoch, Project Manager (email@example.com)
Goals: Committee Goals: We want to develop a strategic plan of priority areas in pediatric kidney health research that will form the basis of the work for the next 5 to 10 years. The patient partners are a necessary part of the process in establishing these priority areas of research.
Study Type: Patient Partnership
Commitment: One virtual training session of approximately two hours duration. One to two hour meetings by video-teleconference, three to four times per year. Two to three patient partners nationally are being sought to help fulfill this role.
Seeking participants from: Parents of children who are living with kidney disease in Canada, or young adults who have recently (in the last seven years) transferred from a Canadian pediatric kidney program to an adult kidney program. Identified passion for improving the health of pediatric patients living with kidney disease. Representative of the diversity of the pediatric kidney population (cultural, gender, geographic area, etc.) Personal experience with kidney disease with onset in the pediatric age group. Able to commit to one to two hours of meeting three to four times per year.