Patient Partners Needed: African, Caribbean, and Black (ACB) Kidney Health and Research

Study Lead

Omo Enilama

University of British Columbia, Can-SOLVE CKD Network

Overview

Are you passionate about improving kidney health in African, Caribbean, and Black (ACB) communities? The Can-SOLVE CKD Network is looking for a patient partner to join the team in co-developing a webinar series focused on ACB kidney health and research in Canada.

In Canada, Black people are at elevated risk of developing kidney disease, have more rapid progression of kidney disease, are referred later for kidney care, are less likely to receive home-based dialysis or a kidney transplant, and have higher mortality after kidney transplantation.

The Can-SOLVE CKD Network is proposing a two-part webinar series to raise awareness among the African, Caribbean and Black (ACB) community on: 1) kidney health and prevention strategies, and 2) opportunities to participate in and lead kidney research. The webinars will involve a panel of ACB leaders in the kidney community, including nephrologists, researchers, and patient partners.

Patient partners will receive honoraria (compensation) for their participation. Approximately 1-2 hours of work per month, with times of no work.

Call for participants closes on August 31, 2025.

Study Contact: Omo Enilama, oenilama@cansolveckd.ca

Eligibility

To participate you must meet all of the following criteria:

  • Over the age of 18,
  • Identify as African, Caribbean, and/or Black,
  • Have chronic kidney disease, or be a family member/caregiver to someone that has it.

Type of Participation

Patient Partnership

Diagnosis

Acute Kidney Injury, Chronic Kidney Disease, Glomerulonephritis, Nephrotic Syndrome, Pediatric Kidney Disease, Polycystic Kidney Disease

Related Condition

Diabetes, Heart Disease, High Blood Pressure

Treatment

Conservative Kidney Management, Hemodialysis, Palliative Care, Peritoneal Dialysis, Transplantation

Topic

Caregivers, Peer Support, Quality of Life

Location

Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland & Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Saskatchewan, Yukon

Related studies

  • Patient Partners Needed: African, Caribbean, and Black (ACB) Kidney Health and Research

    Overview:

    Study type: Patient Partnership

    April 22, 2025

  • Can-SOLVE CKD Inclusion, diversity, equity, and accessibility (IDEA) Advisory – Seeking New Members

    Overview:

    Study type: Focus Group

    April 17, 2025

  • Obesity management for kidney TRANSPLANTation (OK-TRANSPLANT 2)

    Overview:

    Study type: Interview, Survey

    April 16, 2025