Members, BC Renal Patient & Family Engagement Advisory Committee

Overview

BC Renal is seeking patients and family members to participate in the Patient & Family Engagement Advisory Committee, which will guide this engagement in our provincial committees and key activities. Participants will help make decisions to advance patient and family engagement based on the BC Renal Patient and Family Engagement Framework. Committee members will include patient partners, health professionals from regional health authorities, as well as staff from BC Renal and the Kidney Foundation—BC & Yukon Branch. Members will work together by sharing their perspectives on what matters in patient and family engagement in BC Renal committees and key activities.

Level of engagement: Collaborate: BC Renal will work together with all members in decision making, developing alternatives and solutions, and will include your recommendations into each decision as much as possible.

Commitment:

  • Quarterly meetings; 90 minutes each via video or teleconference during typical work day hours (9 a.m. to 5 p.m.)
  • An annual meeting will be a half-day in-person meeting in Vancouver if circumstances permit (post-pandemic)
  • Term membership will be two years with possible extension for up to one more year.

Compensation: Expenses for travel and accommodation, if needed, will be reimbursed.

RSVP questions:

Please respond to the following questions by email (patientengagement@bcrenal.ca) or phone (604-875-7340):

  1. Briefly describe your experience with kidney disease.
  2. Why are you interested in being on this committee?
  3. What skills and expertise would you bring to this committee?

Eligibility

  • Patients or family members with lived experience of chronic kidney disease
  • Experience working and sharing perspectives with diverse groups of people
  • A strong interest in partnering and working together with health professionals to advance patient involvement and quality improvement in kidney health and care.

We are hoping to recruit diverse voices and welcome patient partners of various ages, genders, kidney disease experiences, and cultural backgrounds from across the province.

Type of Participation

Patient Partnership

Diagnosis

Chronic Kidney Disease

Location

British Columbia

Related studies

  • Take part in one hemodialysis session to evaluate Qidni Labs’ nearly waterless and portable dialysis system

    Overview: Qidni Labs is inviting up to 30 patients with kidney failure to take part in research studying the “Qidni/D”, an investigational hemodialysis device, as a possible treatment for kidney failure.

    Study type: Clinical Trial

    May 16, 2023

  • Person-centered integrated care delivery for patients with chronic kidney disease and multimorbidity in the primary care setting and primary-nephrology care interface

    Overview: Participants are invited to complete a 15-minute survey with questions about their experience with kidney care in Alberta.

    Study type: Survey

    May 16, 2023

  • Aldosterone bloCkade for Health Improvement EValuation in End-stage Renal Disease (ACHIEVE)

    Overview: The purpose of this study is to determine if spironolactone reduces death or hospitalization for heart failure and is well tolerated in patients that require dialysis.

    Study type: Clinical Trial

    April 28, 2023