Identifying and addressing the educational needs of patients from marginalized groups on less-than-ideal kidneys
Overview
Transplantation is a life-saving therapy for patients with kidney disease, but patients continue to deteriorate on the waitlist. Meanwhile, sometimes physicians decline deceased donor kidney offers on behalf of their patients without discussing it with them. The purpose of this study is to learn about how people feel about decision-making about deceased donor kidneys. We also want to learn what people know about how kidneys are allocated and how they feel about less-than-ideal kidneys. The purpose of this study is to explore the unique needs of patients and caregivers from minority groups and develop an educational toolkit in order to help patients with the decision-making process to accept or decline a kidney from a marginal donor.
Deadline to participate: 31/11/2025
Eligibility
You are eligible to participate in this study if you are a kidney transplant recipient, a candidate for a kidney transplant or a caregiver, and, you are from an Indigenous (First Nations, Métis, Inuit), or an historically marginalized community in Canada (such as Afro-Caribbean, South or East Asian, or African).
