Help Shape the Future of Pediatric Lupus Research

Study Lead

Linda Hiraki, MD, FRCPC, ScD

University of British Columbia / BC Children's Hospital

Overview

Researchers are creating a national registry to support future clinical trials for children with lupus and lupus-related kidney disease (lupus nephritis). This has never been done in Canada — and your voice can help guide the process.

They’re seeking patient and parent partners to help build and strengthen this registry by reviewing documents and patient-facing study materials via email, and joining virtual meetings (quarterly or annually). If you or your child were diagnosed with lupus or lupus kidney disease in childhood, or you’re a caregiver or family member, we’d love to hear from you.

Deadline: 12/31/2026

Eligibility

Patient, parent, or partner of someone diagnosed with childhood-onset lupus and/or lupus kidney disease. Adult patients who were diagnosed as a child are eligible and welcome. Adolescents and children would need parental support.

Type of Participation

Patient Partnership

Diagnosis

Pediatric Kidney Disease

Topic

Caregivers

Location

Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland & Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Saskatchewan, Yukon

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