Help Shape the Future of Pediatric Lupus Research

Study Lead

Scott Wenderfer, MD, PhD, FASN

University of British Columbia / BC Children's Hospital

Overview

Researchers in Canada are creating a first-of-its-kind national registry to support future clinical trials for children with lupus and lupus-related kidney disease (lupus nephritis), and your voice can help guide the process.

What’s required:
If you or your child were diagnosed with lupus or lupus kidney disease in childhood, or you’re a caregiver or family member, the research team would love to hear from you. Patients and parent partners will help build and strengthen this national registry by:

  • Reviewing documents and patient-facing study materials via email
  • Joining virtual meetings (quarterly or annually)

Deadline to join: December 31, 2026

Eligibility

You are eligible to participate if you are a:

  • Patient, parent, or partner of someone diagnosed with childhood-onset lupus and/or lupus kidney disease
  • An adult patient who was diagnosed as a child

Please note: Adolescents and children will need the support of a parent/adult guardian to participate.

Type of Participation

Patient Partnership

Diagnosis

Pediatric Kidney Disease

Topic

Caregivers

Location

Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland & Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Saskatchewan, Yukon

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